Hey everyone, I just wanted to let everyone know that I'm really enjoying receiving everyone's questions, I will get those answered before AAN is over. There are some really great questions coming in... a lot about Stem Cell, and BG-12...
Make sure you are keeping up to date with the videos being posted in the Conference Center: AAN section... We are uploading new videos everyday, and some of your questions might be covered in some of these videos, but I will still ask them.
Remember, you can ask questions as anonymous, no names will be given out during these questions and answers time period. I will ask any question about your MS that you have. Even the embarrassing ones. I do suffer from embarrassing symptoms, so I have no problem getting out there and getting the information that all of use suffering with MS need to know because we suffer from it, or need to know just for general knowledge.
I wanted to explain a little bit about the poster sessions that we've been interviewing at. If you didn't notice, these are all about research and clinical trials that are going on. So, just to let you know, there are posters among posters, that change day by day, of research being done for all those living with MS... about MS in general, MS and pregnancy, MS and medicines, MS and symptoms, so keep fighting this MonSter and know that there are people (doctors) out there that are dedicated to helping us.
So from what I've learned this year at AAN, is that you need to be very open with your Doctor about everything you are experiencing, don't sugar coat anything on how you are feeling at that moment.
Also, keep a journal of your symptoms, questions, and if you are experiencing any side-effects to any of your medications.
I've also heard that as people living with Multiple Sclerosis, we are the most educated patients that most neurologists have, because it's up to us to make a difference in the world of MS.
Well, I'm off to the meeting again, I'll do another update soon.
Kind Regards,
Ashley
Thursday, April 26, 2012
Tuesday, April 24, 2012
AAN Update for Day One and Day Two (AAN 2012)
Well, we made it to New Orleans safe and sound, I hope everyone is enjoying the coverage we have been recording. There is much more to come! If you haven't looked at the "Vlog" about the Brain Health Fair, please do so now:
https://conferencecenter.msworld.org/american-academy-of-neurology-2012-annual-meeting/ashley-in-new-orleans/brain-health-fair
Genzyme's Booth at the Brain Health Fair on Saturday was focused on bringing awareness about patients with MS everyday life, to patients' family & friends. This is what we were discussing in the Brain Health Fair video, about the CHUMS (Childrens Hope for Understanding Multiple Sclerosis)
The above CHUMS site let people in the exhibit "try on MS", here are some pictures from that booth:
At this booth, those who didn't have MS... Saw a cord that was split, exposing the wires... then had to put on glasses, that were not their prescription, then had to put on gloves and try and flip a magazine, then read the pages. And THEN, there were weights to put on the wrists as well. Gotta love my husband for being a good sport in trying this out.
Make sure you keep checking back w/ the Conference Center, to see the new videos being uploaded.
Today, Omi, James and I went to the exhibits, where all the companies have booths and information about their products. It's always a lot of fun going to the exhibit and learning more and more about MS & the medications available.
Yesterday (Day Two) was a LONG day, but we got a lot of recordings done, and we hope you enjoy them. If you missed out on the first day of coverage, you can view Day One now.
Some were done with doctors by the press room, some were done in the poster area of the convention center.
We're about to meet up with Dr. Kantor to get Day Three's recordings done. So we're looking forward to that. This meeting is full of information, not just about Multiple Sclerosis, but about symptoms that we do suffer from, being diagnosed with Multiple Sclerosis.
Thank you for all of the questions y'all are submitting. I will get them answered by the end of the meeting, once all of the "gatherings" are over, so we can give you the most update information available. Keep submitting questions/comments, thanks for catching up with MSWorld at the 2012 AAN Meeting!
New Orleans or "Nawlins" is a wonderful, fun, exciting city! This is my first time here, and the weather has been beautiful the whole time. I'm still at the Convention Center now, but I am going to go through all of the information I have gathered today at the exhibits and such, and will either blog again, or do a vlog to keep everyone posted on ALL things MS!
Remember, leave your questions/comments on this blog, or you can e-mail them to QandA@msworld.org
xoxoxoxo
Ashley
https://conferencecenter.msworld.org/american-academy-of-neurology-2012-annual-meeting/ashley-in-new-orleans/brain-health-fair
Genzyme's Booth at the Brain Health Fair on Saturday was focused on bringing awareness about patients with MS everyday life, to patients' family & friends. This is what we were discussing in the Brain Health Fair video, about the CHUMS (Childrens Hope for Understanding Multiple Sclerosis)The above CHUMS site let people in the exhibit "try on MS", here are some pictures from that booth:
At this booth, those who didn't have MS... Saw a cord that was split, exposing the wires... then had to put on glasses, that were not their prescription, then had to put on gloves and try and flip a magazine, then read the pages. And THEN, there were weights to put on the wrists as well. Gotta love my husband for being a good sport in trying this out.
Make sure you keep checking back w/ the Conference Center, to see the new videos being uploaded.
Today, Omi, James and I went to the exhibits, where all the companies have booths and information about their products. It's always a lot of fun going to the exhibit and learning more and more about MS & the medications available.
Yesterday (Day Two) was a LONG day, but we got a lot of recordings done, and we hope you enjoy them. If you missed out on the first day of coverage, you can view Day One now.
Some were done with doctors by the press room, some were done in the poster area of the convention center.
We're about to meet up with Dr. Kantor to get Day Three's recordings done. So we're looking forward to that. This meeting is full of information, not just about Multiple Sclerosis, but about symptoms that we do suffer from, being diagnosed with Multiple Sclerosis.
Thank you for all of the questions y'all are submitting. I will get them answered by the end of the meeting, once all of the "gatherings" are over, so we can give you the most update information available. Keep submitting questions/comments, thanks for catching up with MSWorld at the 2012 AAN Meeting!
New Orleans or "Nawlins" is a wonderful, fun, exciting city! This is my first time here, and the weather has been beautiful the whole time. I'm still at the Convention Center now, but I am going to go through all of the information I have gathered today at the exhibits and such, and will either blog again, or do a vlog to keep everyone posted on ALL things MS!
Remember, leave your questions/comments on this blog, or you can e-mail them to QandA@msworld.org
xoxoxoxo
Ashley
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